Currently recruiting studies: Difference between revisions
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* See [https://www.reddit.com/r/PSSD/comments/11apvol/queens_university_pssd_research_project_2023/ Reddit thread]. | * See [https://www.reddit.com/r/PSSD/comments/11apvol/queens_university_pssd_research_project_2023/ Reddit thread]. | ||
* Join via the [https://queensu.qualtrics.com/jfe/form/SV_4NnG8T2XJij1yZg Qualtrics survey]. | * Join via the [https://queensu.qualtrics.com/jfe/form/SV_4NnG8T2XJij1yZg Qualtrics survey]. | ||
David Healy recruiting for CCM project (CCM is a test for small fiber neuropathy) | |||
* See https://rxisk.org/pssd-patients-needed-for-ccm-investigation/ | |||
See the subreddit [https://www.reddit.com/r/PSSD/ r/PSSD] for current information on PSSD studies that are recruiting. [https://www.reddit.com/r/PSSD/comments/13uox8f/if_you_suffer_from_pssd_and_have_not_already_done/ This thread] will likely be incorporated into another post somewhere on that subreddit. | See the subreddit [https://www.reddit.com/r/PSSD/ r/PSSD] for current information on PSSD studies that are recruiting. [https://www.reddit.com/r/PSSD/comments/13uox8f/if_you_suffer_from_pssd_and_have_not_already_done/ This thread] will likely be incorporated into another post somewhere on that subreddit. | ||
Revision as of 21:11, 31 May 2023
Long COVID
Fasting study - Jeffrey Novak PhD, Tom Bunker PhD
The Twitter user @organichemusic regularly runs surveys.
- https://twitter.com/organichemusic
- Her previous survey results are published at https://pharmd.substack.com/
COVID Vx Injury
- May take 1 hour to complete. However, this survey takes less time to complete if you skip optional portions.
Identical Twin Registry
- If you have an identical twin, please register here. You can decide if you want to enter in your contact information so that researchers can reach out to you for recruitment.
(Upcoming) Genome-Wide Association Study
- Principal investigator: Bruce Carleton (The University of British Columbia).
- https://clinicaltrials.gov/ct2/show/NCT05212792
- Recruiting: Any patient who received COVID-19 vccnes and developed GBS, VITT/TTS, or myocarditis/pericarditis after vccnation
Chronic Illness
Yale LISTEN study, hosted on the Kindred Hugo Health platform
- Recruiting Long COVID and vx injured
- Enroll via https://www.kindred.hugo.health/research/listen-study
- Hugo Health has videos on its Youtube channel where you can see how they engage with chronic illness communities: https://www.youtube.com/@hugohealthkindred
COVID and Tinnitus Survey
- Recruiting Long COVID and vx injured
- https://illinoisahs.co1.qualtrics.com/jfe/form/SV_afTJflpRnk1Kdj8
(Upcoming) Patient Experiences Survey, a follow-up to the Treatment Outcomes Survey.
(Upcoming?) MRI study for post-vx and Long COVID patients who have taken a MRI.
Queen's research project.
- See Reddit thread.
- Join via the Qualtrics survey.
David Healy recruiting for CCM project (CCM is a test for small fiber neuropathy)
See the subreddit r/PSSD for current information on PSSD studies that are recruiting. This thread will likely be incorporated into another post somewhere on that subreddit.
Completed Studies
Long Covid & Post Vac Survey (University Hospital of Marburg)