Patient Experiences Survey¶


The Patient Experiences Survey can be found HERE.

The survey takes around 5-10 minutes.

Questions can be addressed to glennchan /at/ gmail [dot] com

An analysis of the current survey data is available below.

The data was analyzed on 2024-01-20.

Tutorial for understanding this page¶

Please visit https://forum.sickandabandoned.com/t/has-anybody-tried-heres-how-you-can-get-answers-to-that-question-fast/228

It is highly recommended that you start there.

Understanding the data¶

The rankings section should give a rough idea as to which treatments stand out as being promising treatments.

The section ranks all of the treatments (while ignoring those with very few data points). Then, specific types of treatments such as diet will be ranked against each another (while including treatments with very few data points). That analysis should help you understand:

  • How different types of treatments compare to each other
  • How different treatments stack up against one another within a particular category/type of treatment.

The charts section provides breakdowns for individual treatments. If a treatment has very few data points, it may be grouped together with other similar treatments.

The Symptoms versus treatment responses section analyzes whether self-reported symptoms correlate with treatment response.

The Severity analysis section looks at whether or not treatment responses are different based on peak severity (during the worst month of illness), current severity (past 30 days), and recovery (current versus peak severity).

How to use this analysis¶

If you're interested in a particular treatment, search this webpage for the name of that treatment. On desktops, use Crtl+F to bring up your browser's search function.

Treatment names are usually chosen to be short and memorable:

  • PLEX instead of plasmapheresis, therapeutic plasma exchange (TPE), etc.
  • Alinia instead of nitazoxanide.

Remember to search for brand names and short versions of a treatment's name. Usually there is a section where multiple names for a single treatment are listed- searching for any of the names will help you find the shortened memorable names.

Sections¶

  • Understanding the data
  • Rankings of treatments
  • Charts of treatment outcomes
  • Demographics
  • Symptoms versus treatment responses
  • Severity analysis
  • Additional analysis

Rankings of treatments¶

  • Significant improvement is given a score of 3.
  • Mild improvement is given a score of 1.
  • Not much benefit/harm is given a score of 0.
  • Mild worsening is given a score of -1.
  • Significant worsening is given a score of -3.
  • Effect unclear is given a score of 0.

All treatments are judged based on its average score. If all surveyees were to report mild improvement, then the average score would be 1.

For risk scoring, only the negative scores are considered. The maximum possible range is from 0 to -3.

NOTE: This way of surveying patients likely measures patient satisfaction more than medical outcomes. It also measures aspects unrelated to medical outcomes (or patient satisfaction) such as how surveyees interpret survey questions, unfilled survey questions (even though the surveyee tried that treatment), etc.

Warning: Some treatments may be far more dangerous than they appear. In particular, many medical professionals are unaware of the risks of benzodiazepines and SSRIs such as suicide risk in adults (and children). Those drugs can also lead to withdrawal issues with long-term use. Please use some caution when interpreting the survey results. For example, deaths are not reported in the survey data because those who have passed away cannot fill out surveys.

Ranking of treatments surveyed.

While the chart above is limited to the most popular treatments, the tables below have data on all 235 treatments. Some of them are grouped together.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Avacen] 3.00 0.00 1
2 [Rupatadine] 3.00 0.00 1
3 [Inuspheresis] 2.00 0.00 2
4 [Wet cupping] 1.67 0.00 3
5 [Other diet] 1.54 0.00 56
6 [Urotherapy] 1.50 0.00 4
7 [PLEX] 1.50 0.00 2
8 [Stem cells] 1.43 0.00 7
9 [Other brain retraining] 1.38 0.00 60
10 [Ayurveda] 1.38 -0.08 13
11 [Photobiomodulation] 1.36 -0.09 11
12 [Doxylamine] 1.33 0.00 6
13 [ASEA Redox] 1.33 -0.33 9
14 [Cardio Miracle] 1.33 0.00 6
15 [Paleo diet] 1.33 0.00 21
16 [Pacing strategies] 1.28 -0.06 260
17 [Prayer] 1.25 -0.01 170
18 [Low histamine diet] 1.25 0.00 218
19 [Other chelation] 1.20 0.00 15
20 [Alinia] 1.20 0.00 5
21 [Chlorine dioxide] 1.18 0.00 17
22 [Glutenfree diet] 1.16 -0.00 206
23 [Maraviroc] 1.15 0.00 13
24 [Wahls protocol] 1.15 -0.23 13
25 [Benzodiazepines] 1.13 -0.12 154
26 [IVIG, SCIG] 1.12 0.00 16
27 [AIP diet] 1.08 -0.11 38
28 [HBOT <=1.5 ATA, HBOT >1.5 ATA] 1.06 -0.16 68
29 [Anti inflammatory diet] 1.06 -0.04 95
30 [Other antihistamines] 1.06 0.00 34
31 [Water and salt] 1.02 -0.02 294
32 [HCG] 1.00 0.00 1
33 [Seldane] 1.00 0.00 1
34 [Quifenadine] 1.00 0.00 1
35 [Mizolastine] 1.00 0.00 1
36 [Monoclonals] 1.00 0.00 14
37 [EBOO] 1.00 0.00 7
38 [Rapamycin] 1.00 0.00 4
39 [Avoiding exercise] 0.99 -0.13 333
40 [Opiates] 0.97 -0.26 62
41 [Meditation] 0.96 -0.03 273
42 [Ivermectin] 0.95 -0.15 140
43 [Diazepam] 0.93 -0.26 68
44 [Drinking water] 0.92 0.00 165
45 [LDN] 0.90 -0.26 156
46 [Root wellness] 0.90 -0.10 10
47 [Clarinex] 0.90 -0.19 21
48 [HELP apheresis] 0.88 -0.50 8
49 [Magnesium] 0.86 -0.06 400
50 [Keto diet] 0.86 -0.23 69
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
51 [Colchicine] 0.85 -0.21 34
52 [VNS] 0.85 -0.09 118
53 [Other muscle relaxers] 0.85 -0.21 71
54 [Multiday wet fasting] 0.85 -0.24 46
55 [Time] 0.84 -0.33 508
56 [Guanfacine] 0.83 -0.33 24
57 [IV vitamins] 0.82 -0.06 65
58 [Serrapeptase] 0.82 -0.05 123
59 [Activated charcoal] 0.82 -0.05 39
60 [Other TCM] 0.80 -0.20 45
61 [Osteopathy] 0.80 -0.33 46
62 [TWC detox] 0.80 0.00 10
63 [Intermittent fasting] 0.78 -0.07 236
64 [Carnivore diet] 0.76 -0.14 37
65 [Methylene blue] 0.76 -0.06 33
66 [Kangen water] 0.75 0.00 4
67 [EMDR] 0.75 -0.15 60
68 [Hydroxyzine] 0.74 -0.20 50
69 [Dry cupping] 0.73 -0.07 56
70 [Plant based diet, Vegan diet] 0.73 -0.14 143
71 [St. John's Wort] 0.71 -0.17 24
72 [IV vitamin C] 0.70 -0.07 44
73 [Lumbrokinase] 0.70 -0.04 57
74 [Psychedelic mushrooms] 0.69 -0.20 51
75 [Oil of oregano] 0.69 -0.06 62
76 [NIBS] 0.69 -0.12 16
77 [Beta blockers] 0.68 -0.36 149
78 [Compression garments] 0.67 -0.09 177
79 [Nattokinase] 0.67 -0.11 243
80 [Ambien] 0.67 -0.33 33
81 [Wim Hof with cold] 0.66 -0.18 61
82 [Probiotics prebiotics] 0.66 -0.10 293
83 [Plaquenil] 0.66 -0.32 44
84 [Acupuncture] 0.65 -0.19 182
85 [Cromolyn] 0.65 -0.30 23
86 [IV ozone] 0.64 -0.16 25
87 [Zeolite] 0.64 -0.05 44
88 [DNRS] 0.64 -0.21 14
89 [EDTA] 0.62 -0.12 8
90 [Red light therapy] 0.62 -0.13 91
91 [Cat's claw] 0.62 -0.12 24
92 [Quantum healing] 0.62 -0.19 16
93 [Nigella sativa oil] 0.62 -0.04 72
94 [Zyrtec] 0.61 -0.13 202
95 [Mestinon] 0.61 -0.39 23
96 [Molnupiravir] 0.60 0.00 5
97 [Statins, Red yeast rice] 0.59 -0.18 71
98 [Xyzal] 0.59 -0.41 34
99 [Glutathione] 0.59 -0.08 162
100 [Resveratrol] 0.56 -0.03 137
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
101 [NAC] 0.56 -0.13 267
102 [B vitamins] 0.56 -0.12 388
103 [Multiday juice fasting] 0.56 -0.28 25
104 [Aciclovir, Famciclovir, Valtrex, Valcyte] 0.55 -0.08 87
105 [Vitamin D] 0.54 -0.05 429
106 [CBT] 0.54 -0.10 156
107 [Sleeping with head of bed elevated] 0.53 -0.12 148
108 [Amphotericin, Canesten, Econazole, Fluconazol... 0.53 -0.25 108
109 [24-48 hour fasting] 0.53 -0.40 101
110 [Curcumin] 0.52 -0.08 310
111 [CBD with THC] 0.52 -0.35 168
112 [TRT] 0.52 -0.19 21
113 [CoQ10] 0.52 -0.04 237
114 [Quercetin] 0.52 -0.04 266
115 [Patches] 0.51 -0.32 59
116 [Homeopathy] 0.51 -0.23 77
117 [Claritin] 0.51 -0.11 169
118 [OMAD] 0.51 -0.22 135
119 [Chiropractic] 0.51 -0.27 100
120 [Nigella sativa capsules] 0.51 0.00 67
121 [Gupta program] 0.50 0.00 14
122 [CBD without THC] 0.50 -0.08 155
123 [Zinc] 0.50 -0.06 297
124 [Melatonin] 0.50 -0.18 262
125 [Ebastine] 0.50 0.00 2
126 [Favipiravir] 0.50 0.00 2
127 [Heparin, Eliquis, Clopidogrel, Xarelto, Sulod... 0.50 -0.28 78
128 [Immunoadsorption] 0.50 0.00 2
129 [Bentonite clay] 0.49 -0.06 35
130 [Fish oil etc.] 0.49 -0.02 292
131 [Ketotifen] 0.48 -0.45 29
132 [ALA] 0.48 -0.05 132
133 [Lion's mane] 0.47 -0.15 113
134 [SGB] 0.47 0.00 15
135 [Vitamin C] 0.47 -0.04 351
136 [K vitamins] 0.46 -0.09 160
137 [Pepcid] 0.46 -0.23 173
138 [Tollovid] 0.45 -0.18 11
139 [Corticosteroids] 0.45 -0.50 164
140 [Lavender] 0.45 -0.07 55
141 [Dandelion] 0.42 -0.05 100
142 [Other NSAID] 0.42 -0.21 182
143 [NADH] 0.41 -0.13 93
144 [Multiday dry fasting] 0.40 -0.73 15
145 [Aspirin] 0.40 -0.11 249
146 [DAO] 0.36 -0.19 59
147 [Other pain relievers] 0.36 -0.33 61
148 [Ashwagandha] 0.35 -0.19 150
149 [Monolaurin] 0.34 -0.07 41
150 [Multivitamin] 0.34 -0.07 247
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
151 [Infrared sauna] 0.34 -0.45 67
152 [Allegra] 0.34 -0.12 85
153 [Advil] 0.34 -0.16 279
154 [Wim Hof without cold] 0.33 -0.31 36
155 [Vedicinals9] 0.30 -0.60 10
156 [Benadryl] 0.29 -0.27 120
157 [Tylenol] 0.28 -0.08 240
158 [Augmented NAC] 0.25 -0.21 85
159 [Acrivastine] 0.25 -0.29 51
160 [Lightning process] 0.25 -0.75 4
161 [Traditional sauna] 0.24 -0.39 41
162 [Pine needle tea] 0.24 -0.12 66
163 [Paxlovid] 0.21 -0.42 38
164 [Other nicotine] 0.21 -0.27 33
165 [Rife] 0.20 -0.53 15
166 [Tetracyclines, Fluoroquinolones, Penicillins,... 0.20 -0.56 232
167 [Abilify] 0.15 -0.30 20
168 [Montekulast] 0.14 -0.32 50
169 [Spermidine] 0.14 -0.09 35
170 [Antiseizure] 0.12 -0.45 51
171 [Nigella sativa seed] 0.09 -0.09 11
172 [Gabapentin] 0.06 -0.55 113
173 [Vaping] 0.00 -0.30 37
174 [DTPA] 0.00 0.00 2
175 [Astemizole] 0.00 0.00 1
176 [Methotextrate, Biologic, DMARD] -0.03 -0.64 33
177 [Metformin] -0.09 -0.41 32
178 [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... -0.16 -0.63 206
179 [Elavil, Doxepin, Pamelor, Clomipramine, Clomi... -0.17 -0.62 94
180 [Cigarettes] -0.18 -0.28 40
181 [Remeron, Seroquel, Wellbutrin] -0.34 -0.75 134
182 [Biocidin] -0.38 -0.50 8
183 [Light exercise] -0.42 -0.94 363
184 [Cymbalta, Effexor] -0.44 -0.99 78
185 [Frequency wand] -0.62 -1.25 8
186 [Bilastine] -0.67 -1.00 3
187 [Graded exercise therapy] -0.76 -1.22 129
188 [Semprex D] -1.50 -1.50 2
189 [Intense exercise] -1.78 -2.08 267

Exercise and activity-related only¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Pacing strategies] 1.28 -0.06 260
2 [Avoiding exercise] 0.99 -0.13 333
3 [Light exercise] -0.42 -0.94 363
4 [Graded exercise therapy] -0.76 -1.22 129
5 [Intense exercise] -1.78 -2.08 267

Blood thinning drugs + HELP apheresis¶

Please note that the sample sizes for certain treatments are very small. As well, the data may be highly biased and may not be representative of how other people might respond to blood thinning drugs.

Tylenol (acetaminophen) is not considered to be a blood-thinning drug. It is included because it is a common alternative to other drugs on this list (Advil, Aspirin, etc.).

WARNING: There is one anecdote of a ME/CFS patient worsening after HELP apheresis which eventually resulted in their death. The survey data may not fully capture the risk of that treatment. See https://forum.sickandabandoned.com/t/paper-on-help-apheresis-makes-extraordinary-claims-about-patient-recovery-beate-jaeger-and-colleagues/179
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [HELP apheresis] 0.88 -0.50 8
2 [Clopidogrel] 0.85 -0.19 26
3 [Serrapeptase] 0.82 -0.05 123
4 [Lumbrokinase] 0.70 -0.04 57
5 [Xarelto] 0.67 -0.44 9
6 [Nattokinase] 0.67 -0.11 243
7 [Heparin] 0.47 -0.32 19
8 [Other NSAID] 0.42 -0.21 182
9 [Aspirin] 0.40 -0.11 249
10 [Advil] 0.34 -0.16 279
11 [Tylenol] 0.28 -0.08 240
12 [Eliquis] 0.10 -0.33 21
13 [Sulodexide] 0.00 0.00 3

Current theories and treatments related to those theories¶

Pacing strategies and HBOT (high ATA) are included as reference points.

WARNING: There is one anecdote of a ME/CFS patient worsening after HELP apheresis which eventually resulted in their death. The survey data may not fully capture the risk of that treatment. See https://forum.sickandabandoned.com/t/paper-on-help-apheresis-makes-extraordinary-claims-about-patient-recovery-beate-jaeger-and-colleagues/179
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [PLEX] 1.50 0.00 2
2 [HBOT >1.5 ATA] 1.48 -0.12 33
3 [Pacing strategies] 1.28 -0.06 260
4 [Low histamine diet] 1.25 0.00 218
5 [Maraviroc] 1.15 0.00 13
6 [Benzodiazepines] 1.13 -0.12 154
7 [IVIG] 1.00 0.00 14
8 [HELP apheresis] 0.88 -0.50 8
9 [Multiday wet fasting] 0.85 -0.24 46
10 [Clopidogrel] 0.85 -0.19 26
11 [Serrapeptase] 0.82 -0.05 123
12 [Intermittent fasting] 0.78 -0.07 236
13 [Lumbrokinase] 0.70 -0.04 57
14 [Xarelto] 0.67 -0.44 9
15 [Nattokinase] 0.67 -0.11 243
16 [HBOT <=1.5 ATA] 0.66 -0.20 35
17 [Zyrtec] 0.61 -0.13 202
18 [Statins, Red yeast rice] 0.59 -0.18 71
19 [24-48 hour fasting] 0.53 -0.40 101
20 [Quercetin] 0.52 -0.04 266
21 [OMAD] 0.51 -0.22 135
22 [Heparin] 0.47 -0.32 19
23 [Pepcid] 0.46 -0.23 173
24 [Corticosteroids] 0.45 -0.50 164
25 [Other NSAID] 0.42 -0.21 182
26 [Multiday dry fasting] 0.40 -0.73 15
27 [Aspirin] 0.40 -0.11 249
28 [Advil] 0.34 -0.16 279
29 [Eliquis] 0.10 -0.33 21
30 [Sulodexide] 0.00 0.00 3

Certain prescription drugs, statins, maraviroc¶

Excludes anti-depressants, anti-microbials, etc.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Maraviroc] 1.15 0.00 13
2 [Opiates] 0.97 -0.26 62
3 [Diazepam] 0.93 -0.26 68
4 [Colchicine] 0.85 -0.21 34
5 [Other muscle relaxers] 0.85 -0.21 71
6 [Beta blockers] 0.68 -0.36 149
7 [Statins, Red yeast rice] 0.59 -0.18 71
8 [Other pain relievers] 0.36 -0.33 61
9 [Abilify] 0.15 -0.30 20
10 [Antiseizure] 0.12 -0.45 51
11 [Gabapentin] 0.06 -0.55 113

Anti-depressants¶

  • Celexa is a SSRI
  • Cymbalta is a SNRI
  • Elavil is a TCA
  • Remeron is an atypical TCA
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... -0.16 -0.63 206
2 [Elavil, Doxepin, Pamelor, Clomipramine] -0.16 -0.63 91
3 [Remeron, Seroquel, Wellbutrin] -0.34 -0.75 134
4 [Cymbalta, Effexor] -0.44 -0.99 78

Specific psychiatric drugs, SSRIs, TCAs, anti-psychotics, anti-seizure/anti-convulsants¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Diazepam] 0.93 -0.26 68
2 [Guanfacine] 0.83 -0.33 24
3 [Lexapro] 0.26 -0.37 62
4 [Doxepin] 0.19 -0.28 32
5 [Abilify] 0.15 -0.30 20
6 [Prozac] 0.12 -0.49 41
7 [Antiseizure] 0.12 -0.45 51
8 [Gabapentin] 0.06 -0.55 113
9 [Wellbutrin] -0.05 -0.49 55
10 [Cymbalta] -0.25 -0.90 40
11 [Pamelor] -0.26 -0.79 19
12 [Clomipramine] -0.33 -0.33 3
13 [Zoloft] -0.38 -0.83 42
14 [Elavil] -0.41 -0.86 37
15 [Fluvoxamine] -0.42 -0.77 26
16 [Seroquel] -0.52 -0.86 44
17 [Remeron] -0.57 -1.00 35
18 [Vortioxetine] -0.60 -0.80 5
19 [Effexor] -0.63 -1.08 38
20 [Paxil] -0.64 -0.73 11
21 [Celexa] -0.84 -1.05 19

Anti-histamines and certain MCAS drugs¶

While Quetiapine / Seroquel is often thought of as a TCA, it is also a H1 receptor antagonist. It is a dopamine, serotonin, and adrenergic antagonist, and a potent antihistamine with some anticholinergic properties.

DAO = Diamine Oxidase enzyme

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Rupatadine] 3.00 0.00 1
2 [Doxylamine] 1.33 0.00 6
3 [Other antihistamines] 1.06 0.00 34
4 [Quifenadine] 1.00 0.00 1
5 [Mizolastine] 1.00 0.00 1
6 [Seldane] 1.00 0.00 1
7 [Clarinex] 0.90 -0.19 21
8 [Hydroxyzine] 0.74 -0.20 50
9 [Zyrtec] 0.61 -0.13 202
10 [Xyzal] 0.59 -0.41 34
11 [Claritin] 0.51 -0.11 169
12 [Ebastine] 0.50 0.00 2
13 [Ketotifen] 0.48 -0.45 29
14 [Pepcid] 0.46 -0.23 173
15 [DAO] 0.36 -0.19 59
16 [Allegra] 0.34 -0.12 85
17 [Benadryl] 0.29 -0.27 120
18 [Acrivastine] 0.25 -0.29 51
19 [Doxepin] 0.19 -0.28 32
20 [Astemizole] 0.00 0.00 1
21 [Seroquel] -0.52 -0.86 44
22 [Bilastine] -0.67 -1.00 3
23 [Semprex D] -1.50 -1.50 2

Other MCAS treatments and sleep drugs¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Low histamine diet] 1.25 0.00 218
2 [Benzodiazepines] 1.13 -0.12 154
3 [Diazepam] 0.93 -0.26 68
4 [LDN] 0.90 -0.26 156
5 [Ambien] 0.67 -0.33 33
6 [Cromolyn] 0.65 -0.30 23
7 [Mestinon] 0.61 -0.39 23
8 [Montekulast] 0.14 -0.32 50

Over-the-counter supplements only¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Cardio Miracle] 1.33 0.00 6
2 [Root wellness] 0.90 -0.10 10
3 [Magnesium] 0.86 -0.06 400
4 [TWC detox] 0.80 0.00 10
5 [St. John's Wort] 0.71 -0.17 24
6 [Oil of oregano] 0.69 -0.06 62
7 [Probiotics prebiotics] 0.66 -0.10 293
8 [Nigella sativa oil] 0.62 -0.04 72
9 [Cat's claw] 0.62 -0.12 24
10 [Glutathione] 0.59 -0.08 162
11 [NAC] 0.56 -0.13 267
12 [B vitamins] 0.56 -0.12 388
13 [Resveratrol] 0.56 -0.03 137
14 [Vitamin D] 0.54 -0.05 429
15 [CBD with THC] 0.52 -0.35 168
16 [CoQ10] 0.52 -0.04 237
17 [Curcumin] 0.52 -0.08 310
18 [Quercetin] 0.52 -0.04 266
19 [Nigella sativa capsules] 0.51 0.00 67
20 [CBD without THC] 0.50 -0.08 155
21 [Melatonin] 0.50 -0.18 262
22 [Zinc] 0.50 -0.06 297
23 [Fish oil etc.] 0.49 -0.02 292
24 [ALA] 0.48 -0.05 132
25 [Lion's mane] 0.47 -0.15 113
26 [Vitamin C] 0.47 -0.04 351
27 [K vitamins] 0.46 -0.09 160
28 [Lavender] 0.45 -0.07 55
29 [Dandelion] 0.42 -0.05 100
30 [NADH] 0.41 -0.13 93
31 [Monolaurin] 0.34 -0.07 41
32 [Multivitamin] 0.34 -0.07 247
33 [Augmented NAC] 0.25 -0.21 85
34 [Pine needle tea] 0.24 -0.12 66
35 [Spermidine] 0.14 -0.09 35
36 [Nigella sativa seed] 0.09 -0.09 11

Diet only¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Other diet] 1.54 0.00 56
2 [Paleo diet] 1.33 0.00 21
3 [Low histamine diet] 1.25 0.00 218
4 [Glutenfree diet] 1.16 -0.00 206
5 [Wahls protocol] 1.15 -0.23 13
6 [AIP diet] 1.08 -0.11 38
7 [Anti inflammatory diet] 1.06 -0.04 95
8 [Keto diet] 0.86 -0.23 69
9 [Plant based diet] 0.78 -0.08 99
10 [Carnivore diet] 0.76 -0.14 37
11 [Vegan diet] 0.61 -0.27 44

Fasting and autophagy¶

Hydroxychloroquine/Plaquenil inhibits autophagy rather than promoting it.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Multiday wet fasting] 0.85 -0.24 46
2 [Intermittent fasting] 0.78 -0.07 236
3 [Plaquenil] 0.66 -0.32 44
4 [Multiday juice fasting] 0.56 -0.28 25
5 [Resveratrol] 0.56 -0.03 137
6 [24-48 hour fasting] 0.53 -0.40 101
7 [OMAD] 0.51 -0.22 135
8 [Multiday dry fasting] 0.40 -0.73 15
9 [Spermidine] 0.14 -0.09 35

Mental and alternative treatments only¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Avacen] 3.00 0.00 1
2 [Wet cupping] 1.67 0.00 3
3 [Urotherapy] 1.50 0.00 4
4 [Other brain retraining] 1.38 0.00 60
5 [Ayurveda] 1.38 -0.08 13
6 [Photobiomodulation] 1.36 -0.09 11
7 [ASEA Redox] 1.33 -0.33 9
8 [Prayer] 1.25 -0.01 170
9 [Chlorine dioxide] 1.18 0.00 17
10 [Meditation] 0.96 -0.03 273
11 [VNS] 0.85 -0.09 118
12 [Osteopathy] 0.80 -0.33 46
13 [Other TCM] 0.80 -0.20 45
14 [EMDR] 0.75 -0.15 60
15 [Kangen water] 0.75 0.00 4
16 [Dry cupping] 0.73 -0.07 56
17 [NIBS] 0.69 -0.12 16
18 [Wim Hof with cold] 0.66 -0.18 61
19 [Acupuncture] 0.65 -0.19 182
20 [DNRS] 0.64 -0.21 14
21 [Zeolite] 0.64 -0.05 44
22 [Quantum healing] 0.62 -0.19 16
23 [Red light therapy] 0.62 -0.13 91
24 [CBT] 0.54 -0.10 156
25 [Homeopathy] 0.51 -0.23 77
26 [Chiropractic] 0.51 -0.27 100
27 [Gupta program] 0.50 0.00 14
28 [Bentonite clay] 0.49 -0.06 35
29 [Infrared sauna] 0.34 -0.45 67
30 [Wim Hof without cold] 0.33 -0.31 36
31 [Lightning process] 0.25 -0.75 4
32 [Traditional sauna] 0.24 -0.39 41
33 [Rife] 0.20 -0.53 15

Mental treatments only¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Other brain retraining] 1.38 0.00 60
2 [Prayer] 1.25 -0.01 170
3 [Meditation] 0.96 -0.03 273
4 [EMDR] 0.75 -0.15 60
5 [Wim Hof with cold] 0.66 -0.18 61
6 [Acupuncture] 0.65 -0.19 182
7 [DNRS] 0.64 -0.21 14
8 [CBT] 0.54 -0.10 156
9 [Gupta program] 0.50 0.00 14
10 [Wim Hof without cold] 0.33 -0.31 36
11 [Lightning process] 0.25 -0.75 4

Infusion treatments, Expensive treatments including Stellate Ganglion Block, immune-suppressing drugs¶

*This survey did not ask whether methylene blue was taken via IV or swallowed into the body.

WARNING: There is one anecdote of a ME/CFS patient worsening after HELP apheresis which eventually resulted in their death. The survey data may not fully capture the risk of that treatment. See https://forum.sickandabandoned.com/t/paper-on-help-apheresis-makes-extraordinary-claims-about-patient-recovery-beate-jaeger-and-colleagues/179
Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [SCIG] 2.00 0.00 2
2 [Inuspheresis] 2.00 0.00 2
3 [PLEX] 1.50 0.00 2
4 [HBOT >1.5 ATA] 1.48 -0.12 33
5 [Stem cells] 1.43 0.00 7
6 [Rapamycin] 1.00 0.00 4
7 [EBOO] 1.00 0.00 7
8 [IVIG] 1.00 0.00 14
9 [HELP apheresis] 0.88 -0.50 8
10 [IV vitamins] 0.82 -0.06 65
11 [Methylene blue] 0.76 -0.06 33
12 [HBOT <=1.5 ATA] 0.66 -0.20 35
13 [IV ozone] 0.64 -0.16 25
14 [Biologic] 0.56 -0.33 9
15 [Immunoadsorption] 0.50 0.00 2
16 [SGB] 0.47 0.00 15
17 [Corticosteroids] 0.45 -0.50 164
18 [DMARD] 0.17 -0.50 12
19 [Methotextrate] -0.67 -1.00 12

Anti-microbials¶

Chronic Lyme treatments such as HBOT, methylene blue, IV ozone, and monolaurin are included. Amphotericin, Canesten, Econazole, etc. are anti-fungals.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [HBOT >1.5 ATA] 1.48 -0.12 33
2 [Alinia] 1.20 0.00 5
3 [Monoclonals] 1.00 0.00 14
4 [Rapamycin] 1.00 0.00 4
5 [Ivermectin] 0.95 -0.15 140
6 [Methylene blue] 0.76 -0.06 33
7 [Oil of oregano] 0.69 -0.06 62
8 [Plaquenil] 0.66 -0.32 44
9 [HBOT <=1.5 ATA] 0.66 -0.20 35
10 [IV ozone] 0.64 -0.16 25
11 [Cat's claw] 0.62 -0.12 24
12 [Nigella sativa oil] 0.62 -0.04 72
13 [Molnupiravir] 0.60 0.00 5
14 [Aciclovir, Famciclovir, Valtrex, Valcyte] 0.55 -0.08 87
15 [Amphotericin, Canesten, Econazole, Fluconazol... 0.53 -0.25 108
16 [Nigella sativa capsules] 0.51 0.00 67
17 [Favipiravir] 0.50 0.00 2
18 [Lion's mane] 0.47 -0.15 113
19 [Lavender] 0.45 -0.07 55
20 [Monolaurin] 0.34 -0.07 41
21 [Paxlovid] 0.21 -0.42 38
22 [Tetracyclines, Fluoroquinolones, Penicillins,... 0.20 -0.56 232
23 [Nigella sativa seed] 0.09 -0.09 11
24 [Biocidin] -0.38 -0.50 8

Specific antibiotics¶

'Antibiotic unknown type' = The surveyee doesn't know what antibiotic they took.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Aminoglycosides] 1.00 0.00 1
2 [Metronidazole] 1.00 -0.38 13
3 [Rapamycin] 1.00 0.00 4
4 [Clindamycin] 0.82 -0.55 11
5 [Sulfonamides] 0.56 -0.44 9
6 [Tetracyclines] 0.39 -0.39 49
7 [Antibiotic unknown type] 0.33 -0.29 24
8 [Cephalosporins] 0.18 -0.73 11
9 [Other antibiotic] 0.08 -0.50 12
10 [Penicillins] 0.04 -0.63 52
11 [Fluoroquinolones] -0.17 -0.71 24
12 [Macrolides] -0.25 -0.90 20
13 [Nitrofurantoin] -0.83 -1.17 6

COVID-19 treatments¶

Surveyees may have answered in an acute COVID-19 context or outside of an acute COVID-19 context.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Monoclonals] 1.00 0.00 14
2 [Ivermectin] 0.95 -0.15 140
3 [TWC detox] 0.80 0.00 10
4 [Plaquenil] 0.66 -0.32 44
5 [Molnupiravir] 0.60 0.00 5
6 [Vitamin D] 0.54 -0.05 429
7 [Melatonin] 0.50 -0.18 262
8 [Favipiravir] 0.50 0.00 2
9 [Tollovid] 0.45 -0.18 11
10 [Vedicinals9] 0.30 -0.60 10
11 [Paxlovid] 0.21 -0.42 38

Hormone and PSSD-related¶

Surveyees may have answered in an acute COVID-19 context or outside of an acute COVID-19 context.

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [HCG] 1.00 0.00 1
2 [St. John's Wort] 0.71 -0.17 24
3 [TRT] 0.52 -0.19 21
4 [Ashwagandha] 0.35 -0.19 150
5 [Celexa, Lexapro, Fluvoxamine, Prozac, Paxil, ... -0.16 -0.63 206
6 [Elavil, Doxepin, Pamelor, Clomipramine, Clomi... -0.17 -0.62 94
7 [Remeron, Seroquel, Wellbutrin] -0.34 -0.75 134
8 [Cymbalta, Effexor] -0.44 -0.99 78

Nicotine, CBD, and psychedelic mushrooms¶

Surveyees were instructed to leave answers blank if they weren't comfortable answering questions about CBD (which may be illegal in their jurisdiction).

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Psychedelic mushrooms] 0.69 -0.20 51
2 [CBD with THC] 0.52 -0.35 168
3 [Patches] 0.51 -0.32 59
4 [CBD without THC] 0.50 -0.08 155
5 [Other nicotine] 0.21 -0.27 33
6 [Vaping] 0.00 -0.30 37
7 [Cigarettes] -0.18 -0.28 40

Chelation¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Other chelation] 1.20 0.00 15
2 [Activated charcoal] 0.82 -0.05 39
3 [EDTA] 0.62 -0.12 8
4 [DTPA] 0.00 0.00 2

POTS¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Water and salt] 1.02 -0.02 294
2 [Drinking water] 0.92 0.00 165
3 [Guanfacine] 0.83 -0.33 24
4 [Beta blockers] 0.68 -0.36 149
5 [Compression garments] 0.67 -0.09 177
6 [Sleeping with head of bed elevated] 0.53 -0.12 148

Spike protein detox¶

https://worldcouncilforhealth.org/wp-content/uploads/2022/10/Spike-detox-folded-leaflet-17-10-22-LR20.pdf

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Ivermectin] 0.95 -0.15 140
2 [Magnesium] 0.86 -0.06 400
3 [TWC detox] 0.80 0.00 10
4 [Plaquenil] 0.66 -0.32 44
5 [Nigella sativa oil] 0.62 -0.04 72
6 [NAC] 0.56 -0.13 267
7 [Vitamin D] 0.54 -0.05 429
8 [Quercetin] 0.52 -0.04 266
9 [Curcumin] 0.52 -0.08 310
10 [Nigella sativa capsules] 0.51 0.00 67
11 [Zinc] 0.50 -0.06 297
12 [Vitamin C] 0.47 -0.04 351
13 [Vedicinals9] 0.30 -0.60 10
14 [Augmented NAC] 0.25 -0.21 85
15 [Nigella sativa seed] 0.09 -0.09 11

Commercial products, urotherapy, chlorine dioxide (MMS)¶

Treatments with more than 0 data points Score Risk score # of data points (out of 573 surveyees)
1 [Avacen] 3.00 0.00 1
2 [Urotherapy] 1.50 0.00 4
3 [ASEA Redox] 1.33 -0.33 9
4 [Cardio Miracle] 1.33 0.00 6
5 [Chlorine dioxide] 1.18 0.00 17
6 [Root wellness] 0.90 -0.10 10
7 [TWC detox] 0.80 0.00 10
8 [Kangen water] 0.75 0.00 4
9 [Zeolite] 0.64 -0.05 44
10 [DNRS] 0.64 -0.21 14
11 [Gupta program] 0.50 0.00 14
12 [Lightning process] 0.25 -0.75 4
13 [Augmented NAC] 0.25 -0.21 85
14 [Frequency wand] -0.62 -1.25 8

Charts¶

These charts show how surveyees reported their experiences with particular treatments. If the treatment had very few data points, they are usually grouped together with other similar treatments to provide combined data.

Anti-depressants:¶

SSRIs, SNRIs, TCAs

WARNING: Some anti-depressants can lead to serious withdrawal issues and suicide. This survey data may not fully capture the risk of these types of drugs.

SSRIs (Selective Serotonin Reuptake Inhibitors)¶

Fluvoxamine (Luvox)¶

===Popularity stats===
PostVac            4.5%   14/312 patients
LC                 4.3%   10/235 patients
MECFS              7.7%   2/26 patients

SNRIs (Serotonin–Norepinephrine Reuptake Inhibitors)¶

Cymbalta (Duloxetine)¶

===Popularity stats===
PostVac            7.4%   23/312 patients
LC                 5.1%   12/235 patients
MECFS              19.2%   5/26 patients

Effexor (Venlafaxine)¶

===Popularity stats===
PostVac            7.1%   22/312 patients
LC                 3.0%   7/235 patients
MECFS              34.6%   9/26 patients

TCAs (Tricyclic Antidepressants)¶

  • Amitriptyline / Elavil
  • Doxepin / Sinequan, Quitaxon, Adapin, Triadapin, Aponal, and others
  • Nortriptyline / Pamelor
  • Clomipramine / Anafranil

Elavil (Amitriptyline)¶

===Popularity stats===
PostVac            7.4%   23/312 patients
LC                 3.4%   8/235 patients
MECFS              23.1%   6/26 patients

Doxepin (Sinequan, Quitaxon, Adapin, Triadapin, Aponal)¶

===Popularity stats===
PostVac            6.1%   19/312 patients
LC                 5.1%   12/235 patients
MECFS              3.8%   1/26 patients

Other anti-depressants and anti-psychotics¶

===Popularity stats===
PostVac            4.2%   13/312 patients
LC                 9.4%   22/235 patients
MECFS              0.0%   0/26 patients

===Popularity stats===
PostVac            10.6%   33/312 patients
LC                 3.8%   9/235 patients
MECFS              7.7%   2/26 patients

===Popularity stats===
PostVac            7.4%   23/312 patients
LC                 11.9%   28/235 patients
MECFS              15.4%   4/26 patients

Abilify (Aripiprazole)¶

===Popularity stats===
PostVac            1.3%   4/312 patients
LC                 5.5%   13/235 patients
MECFS              11.5%   3/26 patients

Tylenol, other NSAIDs, prescription blood thinners, (natural) anticoag¶

Tylenol (paracetamol)¶

===Popularity stats===
PostVac            38.8%   121/312 patients
LC                 45.1%   106/235 patients
MECFS              50.0%   13/26 patients

Aspirin (acetylsalicylic acid)¶

===Popularity stats===
PostVac            43.3%   135/312 patients
LC                 43.4%   102/235 patients
MECFS              46.2%   12/26 patients

Advil (ibuprofen)¶

===Popularity stats===
PostVac            45.8%   143/312 patients
LC                 52.3%   123/235 patients
MECFS              50.0%   13/26 patients

Other NSAID (Nonsteroidal anti-inflammatory drug)¶

===Popularity stats===
PostVac            32.7%   102/312 patients
LC                 30.6%   72/235 patients
MECFS              30.8%   8/26 patients

Prescription blood thinners¶

Heparin, Eliquis / Apixiban, Clopidogrel, Xarelto, Sulodexide

===Popularity stats===
PostVac            3.2%   10/312 patients
LC                 2.6%   6/235 patients
MECFS              11.5%   3/26 patients

===Popularity stats===
PostVac            3.5%   11/312 patients
LC                 3.8%   9/235 patients
MECFS              3.8%   1/26 patients

===Popularity stats===
PostVac            5.1%   16/312 patients
LC                 3.8%   9/235 patients
MECFS              3.8%   1/26 patients

Nattokinase¶

===Popularity stats===
PostVac            45.8%   143/312 patients
LC                 38.3%   90/235 patients
MECFS              38.5%   10/26 patients

Serrapeptase¶

===Popularity stats===
PostVac            20.5%   64/312 patients
LC                 23.0%   54/235 patients
MECFS              19.2%   5/26 patients

Lumbrokinase¶

===Popularity stats===
PostVac            10.9%   34/312 patients
LC                 8.9%   21/235 patients
MECFS              7.7%   2/26 patients

Hormone¶

HCG (Human chorionic gonadotropin)¶

===Popularity stats===
PostVac            0.0%   0/312 patients
LC                 0.4%   1/235 patients
MECFS              0.0%   0/26 patients

TRT (Testosterone replacement therapy, related to HRT / hormone replacement therapy)¶

===Popularity stats===
PostVac            2.9%   9/312 patients
LC                 4.7%   11/235 patients
MECFS              3.8%   1/26 patients

IVIG, SCIG, and other infusion-based treatment¶

IVIG (Intravenous Immunoglobulin)¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 0.4%   1/235 patients
MECFS              3.8%   1/26 patients

SCIG (subcutaneous immunoglobulin)¶

===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 0.0%   0/235 patients
MECFS              0.0%   0/26 patients

PLEX / TPE (therapeutic plasma exchange) / Plasmapheresis¶

Data on PLEX is also available from the Risk Factors Survey:

  • Survey results slide 22: http://sickandabandoned.com/wp-content/uploads/2023/06/SAA-Risk-Factors-Survey-FULL.pdf
  • 1 mild improvement, 1 significant worsening
===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 0.0%   0/235 patients
MECFS              0.0%   0/26 patients

HELP apheresis (heparin-induced extracorporeal low-density lipoprotein precipitation)¶

WARNING: There is one anecdote of a ME/CFS patient worsening after HELP apheresis which eventually resulted in their death. The survey data may not fully capture the risk of that treatment. See https://forum.sickandabandoned.com/t/paper-on-help-apheresis-makes-extraordinary-claims-about-patient-recovery-beate-jaeger-and-colleagues/179 
===Popularity stats===
PostVac            1.3%   4/312 patients
LC                 1.7%   4/235 patients
MECFS              0.0%   0/26 patients

Inuspheresis¶

===Popularity stats===
PostVac            0.0%   0/312 patients
LC                 0.9%   2/235 patients
MECFS              0.0%   0/26 patients

Immunoadsorption¶

===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 0.0%   0/235 patients
MECFS              0.0%   0/26 patients

IV ozone (intravenous ozone)¶

===Popularity stats===
PostVac            5.8%   18/312 patients
LC                 1.3%   3/235 patients
MECFS              15.4%   4/26 patients

SGB (Stellate ganglion block)¶

===Popularity stats===
PostVac            2.2%   7/312 patients
LC                 3.4%   8/235 patients
MECFS              0.0%   0/26 patients

Stem cells¶

===Popularity stats===
PostVac            1.3%   4/312 patients
LC                 0.9%   2/235 patients
MECFS              3.8%   1/26 patients

IV vitamins (intravenous vitamins) and IV vitamin C¶

===Popularity stats===
PostVac            13.5%   42/312 patients
LC                 7.2%   17/235 patients
MECFS              23.1%   6/26 patients

===Popularity stats===
PostVac            8.7%   27/312 patients
LC                 5.1%   12/235 patients
MECFS              19.2%   5/26 patients

EBOO (extracorporeal blood oxygenation and ozonation)¶

===Popularity stats===
PostVac            1.6%   5/312 patients
LC                 0.4%   1/235 patients
MECFS              3.8%   1/26 patients

Methylene blue¶

===Popularity stats===
PostVac            9.0%   28/312 patients
LC                 1.7%   4/235 patients
MECFS              3.8%   1/26 patients

HBOT (Hyperbaric Oxygen Therapy)¶

HBOT <=1.5 ATA, HBOT >1.5 ATA

===Popularity stats===
PostVac            7.1%   22/312 patients
LC                 4.3%   10/235 patients
MECFS              11.5%   3/26 patients

===Popularity stats===
PostVac            5.8%   18/312 patients
LC                 5.1%   12/235 patients
MECFS              11.5%   3/26 patients

Chelation¶

Activated charcoal¶

===Popularity stats===
PostVac            7.4%   23/312 patients
LC                 4.3%   10/235 patients
MECFS              23.1%   6/26 patients

EDTA (Ethylenediaminetetraacetic acid)¶

===Popularity stats===
PostVac            1.9%   6/312 patients
LC                 0.0%   0/235 patients
MECFS              7.7%   2/26 patients

DTPA (Diethylenetriamine pentaacetate)¶

===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 0.0%   0/235 patients
MECFS              0.0%   0/26 patients

Other chelation¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 0.4%   1/235 patients
MECFS              7.7%   2/26 patients

POTS related treatments (non-pharmaceutical)¶

Compression garments (Compression garments / stockings)¶

===Popularity stats===
PostVac            24.7%   77/312 patients
LC                 40.0%   94/235 patients
MECFS              23.1%   6/26 patients

Water and salt (Increased intake of water and salt)¶

Note: surveyees may have misinterpreted the survey question ('Increased intake of water and salt'), use the data with caution. The higher popularity of this intervention suggests that people without POTS or dysautonomia answered this question and have a different interpretation as to what this intervention is.

===Popularity stats===
PostVac            45.2%   141/312 patients
LC                 61.7%   145/235 patients
MECFS              30.8%   8/26 patients

Drinking water - specifically "Drinking water before getting up in the morning"¶

===Popularity stats===
PostVac            21.2%   66/312 patients
LC                 39.1%   92/235 patients
MECFS              26.9%   7/26 patients

Sleeping with head of bed elevated - specifically "Sleeping with head of the bed elevated"¶

===Popularity stats===
PostVac            25.6%   80/312 patients
LC                 26.0%   61/235 patients
MECFS              26.9%   7/26 patients

Immune suppressing drugs¶

Corticosteroids (e.g. prednisone, methylprednisone, dexamethasone, etc.)¶

===Popularity stats===
PostVac            34.9%   109/312 patients
LC                 20.4%   48/235 patients
MECFS              26.9%   7/26 patients

Do people with lower severity respond better to corticosteroids?
Current severity 4 or less | Average (mean) score: 0.71 | n =  55
Current severity 5 or more | Average (mean) score: 0.28 | n =  83

Methotextrate¶

===Popularity stats===
PostVac            2.9%   9/312 patients
LC                 1.3%   3/235 patients
MECFS              0.0%   0/26 patients

Biologic, e.g. Humira, Enbrel, rituximab¶

===Popularity stats===
PostVac            2.2%   7/312 patients
LC                 0.9%   2/235 patients
MECFS              0.0%   0/26 patients

Other DMARD (Disease-Modifying Anti-Rheumatic Drug)¶

===Popularity stats===
PostVac            1.9%   6/312 patients
LC                 2.6%   6/235 patients
MECFS              0.0%   0/26 patients

Traditional anti-microbials¶

Anti-parasitic / Anti-helmintic¶

Ivermectin (Stromectol, Soolantra)¶

===Popularity stats===
PostVac            33.0%   103/312 patients
LC                 11.9%   28/235 patients
MECFS              34.6%   9/26 patients

Hydroxychloroquine (Plaquenil)¶

===Popularity stats===
PostVac            10.3%   32/312 patients
LC                 3.4%   8/235 patients
MECFS              15.4%   4/26 patients

Alinia (Nitazoxanide)¶

===Popularity stats===
PostVac            1.0%   3/312 patients
LC                 0.0%   0/235 patients
MECFS              7.7%   2/26 patients

Antibiotics, e.g. tetracyclines, macrolides, fluoroquinolones ('flox'), doxycycline, etc.¶

Warning: The 'flox' antibiotics or fluoroquinolones have support groups for people injured by them. Please do your research before taking them, especially when there are many alternatives available.

Rapamycin (Sirolimus)¶

===Popularity stats===
PostVac            0.0%   0/312 patients
LC                 0.9%   2/235 patients
MECFS              7.7%   2/26 patients

Antivirals - Aciclovir, Famiciclovir, Valtrex (valacyclovir), Valcyte (valganciclovir)¶

Valtrex (valacyclovir / valaciclovir)¶

===Popularity stats===
PostVac            7.4%   23/312 patients
LC                 10.2%   24/235 patients
MECFS              15.4%   4/26 patients

Valcyte (valganciclovir / valgancyclovir)¶

===Popularity stats===
PostVac            0.3%   1/312 patients
LC                 0.4%   1/235 patients
MECFS              3.8%   1/26 patients

Aciclovir / acyclovir¶

===Popularity stats===
PostVac            4.8%   15/312 patients
LC                 4.7%   11/235 patients
MECFS              3.8%   1/26 patients

Famciclovir / Famvir / Famyclovir¶

===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 1.3%   3/235 patients
MECFS              3.8%   1/26 patients

Anti-fungal: Fluconazole, Amphotericin, Canesten, Econazole, Ketoconazole, Miconazole, Nystatin, Terbinafine, Other antifungal¶

COVID-19 treatments¶

Paxlovid (Nirmatrelvir / ritonavir)¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 10.6%   25/235 patients
MECFS              3.8%   1/26 patients

Molnupiravir¶

===Popularity stats===
PostVac            0.6%   2/312 patients
LC                 1.3%   3/235 patients
MECFS              0.0%   0/26 patients

Monoclonal antibodies (monoclonals)¶

===Popularity stats===
PostVac            3.2%   10/312 patients
LC                 1.3%   3/235 patients
MECFS              3.8%   1/26 patients

Tollovid¶

===Popularity stats===
PostVac            0.3%   1/312 patients
LC                 4.3%   10/235 patients
MECFS              0.0%   0/26 patients

Vedicinals9¶

===Popularity stats===
PostVac            1.9%   6/312 patients
LC                 1.7%   4/235 patients
MECFS              0.0%   0/26 patients

Prescription drugs¶

Opiates, e.g. fentanyl, codeine¶

===Popularity stats===
PostVac            12.8%   40/312 patients
LC                 6.0%   14/235 patients
MECFS              30.8%   8/26 patients

Other pain relievers¶

===Popularity stats===
PostVac            13.1%   41/312 patients
LC                 7.2%   17/235 patients
MECFS              11.5%   3/26 patients

Gabapentin (Neurontin)¶

WARNING: Gabapentin can lead to suicide. The survey data may not fully capture the risk of these types of drugs. 
===Popularity stats===
PostVac            22.4%   70/312 patients
LC                 15.3%   36/235 patients
MECFS              26.9%   7/26 patients

Benzodiazepines e.g. Xanax, Ativan, clonazepam¶

WARNING: Benzodiazepines can lead to serious withdrawal issues and suicide. The survey data may not fully capture the risk of these types of drugs. 
===Popularity stats===
PostVac            26.9%   84/312 patients
LC                 26.0%   61/235 patients
MECFS              34.6%   9/26 patients

Ambien (zolpidem)¶

===Popularity stats===
PostVac            4.2%   13/312 patients
LC                 5.5%   13/235 patients
MECFS              26.9%   7/26 patients

Diazepam (Valium)¶

===Popularity stats===
PostVac            13.8%   43/312 patients
LC                 8.5%   20/235 patients
MECFS              19.2%   5/26 patients

Other muscle relaxers e.g. Baclofen, cyclobenzaprine¶

===Popularity stats===
PostVac            12.5%   39/312 patients
LC                 11.1%   26/235 patients
MECFS              23.1%   6/26 patients

Antiseizure (anti-seizure), e.g. topiramate / Topamax, lamotrigine / Lamictal¶

WARNING: Some anti-seizure drugs increase the risk of suicidal ideation. The survey data may not fully capture the risk of these types of drugs. 
===Popularity stats===
PostVac            8.3%   26/312 patients
LC                 9.4%   22/235 patients
MECFS              11.5%   3/26 patients

Beta blockers¶

===Popularity stats===
PostVac            25.0%   78/312 patients
LC                 27.2%   64/235 patients
MECFS              26.9%   7/26 patients

Guanfacine (Tenex)¶

===Popularity stats===
PostVac            1.9%   6/312 patients
LC                 7.7%   18/235 patients
MECFS              0.0%   0/26 patients

Mestinon (Pyridostigmine)¶

===Popularity stats===
PostVac            2.9%   9/312 patients
LC                 5.5%   13/235 patients
MECFS              3.8%   1/26 patients

Montekulast (Singulair)¶

===Popularity stats===
PostVac            8.0%   25/312 patients
LC                 8.9%   21/235 patients
MECFS              15.4%   4/26 patients

Colchicine¶

===Popularity stats===
PostVac            7.7%   24/312 patients
LC                 3.4%   8/235 patients
MECFS              7.7%   2/26 patients

Metformin¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 8.1%   19/235 patients
MECFS              3.8%   1/26 patients

Statins (including red yeast rice)¶

Maraviroc (Selzentry / Celsentri)¶

===Popularity stats===
PostVac            2.6%   8/312 patients
LC                 2.1%   5/235 patients
MECFS              0.0%   0/26 patients

Anti-histamines¶

Acrivastine (Benadryl Allergy Relief in the UK)¶

===Popularity stats===
PostVac            9.9%   31/312 patients
LC                 8.5%   20/235 patients
MECFS              0.0%   0/26 patients

Cetirizine (Zyrtec)¶

===Popularity stats===
PostVac            30.1%   94/312 patients
LC                 42.6%   100/235 patients
MECFS              30.8%   8/26 patients

Diphenhydramine / Benadryl¶

===Popularity stats===
PostVac            16.7%   52/312 patients
LC                 26.8%   63/235 patients
MECFS              19.2%   5/26 patients

Famotidine (Pepcid)¶

===Popularity stats===
PostVac            29.5%   92/312 patients
LC                 31.9%   75/235 patients
MECFS              23.1%   6/26 patients

Fexofenadine (Allegra)¶

===Popularity stats===
PostVac            12.2%   38/312 patients
LC                 19.1%   45/235 patients
MECFS              7.7%   2/26 patients

Loratadine (Claritin)¶

===Popularity stats===
PostVac            25.0%   78/312 patients
LC                 37.0%   87/235 patients
MECFS              15.4%   4/26 patients

Ketotifen (Zaditor)¶

===Popularity stats===
PostVac            4.8%   15/312 patients
LC                 5.1%   12/235 patients
MECFS              7.7%   2/26 patients

Levocetirizine (Xyzal)¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 8.9%   21/235 patients
MECFS              3.8%   1/26 patients

DAO enzymes (Diamine oxidase enzymes)¶

===Popularity stats===
PostVac            8.3%   26/312 patients
LC                 13.2%   31/235 patients
MECFS              7.7%   2/26 patients

Other anti-histamines¶

Note: Some anti-histamine drugs (e.g. Doxepin, Seroquel) are listed under anti-depressants above.

Desloratadine (Clarinex)¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 3.8%   9/235 patients
MECFS              0.0%   0/26 patients

Cromolyn / Cromoglicic acid¶

===Popularity stats===
PostVac            4.2%   13/312 patients
LC                 3.4%   8/235 patients
MECFS              7.7%   2/26 patients

LDN / Low dose naltrexone¶

===Popularity stats===
PostVac            24.0%   75/312 patients
LC                 30.6%   72/235 patients
MECFS              34.6%   9/26 patients

Other anti-histamines e.g. Hydroxyzine, Bilastine, etc.¶

Supplements and over-the-counter drugs¶

Nigella sativa oil. The nigella sative plant is used to produce 'black seed oil'¶

This survey had three categories for the nigella sativa plant: oil, capsules (e.g. gelcaps, vegcaps), and the seed of the plant.

===Popularity stats===
PostVac            15.4%   48/312 patients
LC                 8.1%   19/235 patients
MECFS              19.2%   5/26 patients

===Popularity stats===
PostVac            15.1%   47/312 patients
LC                 6.4%   15/235 patients
MECFS              19.2%   5/26 patients

===Popularity stats===
PostVac            1.9%   6/312 patients
LC                 1.7%   4/235 patients
MECFS              3.8%   1/26 patients

ALA / Alpha-lipoic acid¶

===Popularity stats===
PostVac            24.0%   75/312 patients
LC                 20.0%   47/235 patients
MECFS              38.5%   10/26 patients

Ashwagandha¶

===Popularity stats===
PostVac            26.9%   84/312 patients
LC                 26.0%   61/235 patients
MECFS              19.2%   5/26 patients

Biocidin¶

===Popularity stats===
PostVac            1.3%   4/312 patients
LC                 1.3%   3/235 patients
MECFS              3.8%   1/26 patients

Cat's claw (Cats claw, uña de gato, uncaria tomentosa)¶

===Popularity stats===
PostVac            3.8%   12/312 patients
LC                 3.8%   9/235 patients
MECFS              11.5%   3/26 patients

CBD without THC | CBD (cannabidiol) without THC¶

===Popularity stats===
PostVac            25.3%   79/312 patients
LC                 28.5%   67/235 patients
MECFS              34.6%   9/26 patients

CBD with THC | CBD (cannabidiol) with THC¶

===Popularity stats===
PostVac            30.8%   96/312 patients
LC                 27.7%   65/235 patients
MECFS              26.9%   7/26 patients

CoQ10 (Co-enzyme q10 / Coenzyme Q10)¶

===Popularity stats===
PostVac            36.5%   114/312 patients
LC                 44.7%   105/235 patients
MECFS              69.2%   18/26 patients

Curcumin¶

===Popularity stats===
PostVac            55.8%   174/312 patients
LC                 51.9%   122/235 patients
MECFS              53.8%   14/26 patients

Dandelion¶

===Popularity stats===
PostVac            19.6%   61/312 patients
LC                 13.2%   31/235 patients
MECFS              30.8%   8/26 patients

Fish oil etc. | Fish oil, krill oil, omega 3/6¶

===Popularity stats===
PostVac            48.7%   152/312 patients
LC                 52.3%   123/235 patients
MECFS              65.4%   17/26 patients

Glutathione¶

===Popularity stats===
PostVac            34.6%   108/312 patients
LC                 19.1%   45/235 patients
MECFS              34.6%   9/26 patients

Lavender¶

===Popularity stats===
PostVac            11.2%   35/312 patients
LC                 7.7%   18/235 patients
MECFS              7.7%   2/26 patients

Lion's mane¶

===Popularity stats===
PostVac            20.5%   64/312 patients
LC                 19.6%   46/235 patients
MECFS              11.5%   3/26 patients

Melatonin¶

===Popularity stats===
PostVac            44.2%   138/312 patients
LC                 47.7%   112/235 patients
MECFS              46.2%   12/26 patients

Monolaurin (Lauricidin)¶

===Popularity stats===
PostVac            7.1%   22/312 patients
LC                 6.8%   16/235 patients
MECFS              11.5%   3/26 patients

NAC (N-Acetyl Cysteine)¶

===Popularity stats===
PostVac            49.0%   153/312 patients
LC                 44.3%   104/235 patients
MECFS              38.5%   10/26 patients

Augmented NAC (Augmented NAC, Quantum NAC)¶

===Popularity stats===
PostVac            16.0%   50/312 patients
LC                 12.8%   30/235 patients
MECFS              19.2%   5/26 patients

NADH (Nicotinamide adenine dinucleotide)¶

===Popularity stats===
PostVac            14.4%   45/312 patients
LC                 17.4%   41/235 patients
MECFS              26.9%   7/26 patients

Oil of oregano¶

===Popularity stats===
PostVac            11.2%   35/312 patients
LC                 10.6%   25/235 patients
MECFS              7.7%   2/26 patients

Pine needle tea¶

===Popularity stats===
PostVac            18.6%   58/312 patients
LC                 2.6%   6/235 patients
MECFS              7.7%   2/26 patients

Probiotics prebiotics¶

===Popularity stats===
PostVac            45.5%   142/312 patients
LC                 56.6%   133/235 patients
MECFS              69.2%   18/26 patients

Quercetin¶

===Popularity stats===
PostVac            52.2%   163/312 patients
LC                 38.7%   91/235 patients
MECFS              46.2%   12/26 patients