V🥕ccn injury research surveys (completed)
Long Haul Wiki / Sick And Abandoned[edit]
- Treatment Outcomes Survey - Response to treatments
- Patient Experiences Survey - Response to treatments
- Risk Factors survey - Risk Factors, autoimmunity, response to C0VID infection and vccnation
- Hypermobility polls - The vax injured are, on average, more flexible/hypermobile than the general population.
React19[edit]
- Survey #1 - Symptoms, MTHFR gene, which symptoms were the worst
- Survey #2 - Symptom clusters
- Highlights (38 slides) [archive.org]
- Full dataset (58 slides) [archive.org]
- Please note that a version on the React19 website may contain factual inaccuracies not found in the version released May 2022. That altered version was published without the permission of all co-authors of the work.
- Also note that the current version of the React19.org website may not necessarily point to the original versions that can be accessed via archive.org links.
Thomas Bunker / Recover from Long C0VID[edit]
https://recoverfromlongcovid.com/?page_id=413
A comparison based on 55 common symptoms. Found higher severity in females than males.
C0VID Castaways / Devin Russell[edit]
Apheresis survey - Data on people who have tried HELP apheresis (21) and a limited number of people who have tried EBOO, EBO2, InusPheresis, LDL Apheresis. 18.5% got much better from their Apheresis Treatment.
Eureka Health[edit]
Noah Macca scraped online posts from Reddit and Twitter to extract patient-reported experiences regarding treatment.
- r/VaccineLongHaulers: https://www.reddit.com/r/vaccinelonghaulers/comments/1353m96/i_fed_this_subreddit_into_a_language_model_to_see/
- r/LongCOVID: https://www.reddit.com/r/LongCovid/comments/11y2mzs/update_i_have_now_fed_7_lc_subreddits_and_twitter/
- r/Lyme: https://www.reddit.com/r/Lyme/comments/12709tl/i_fed_this_subreddit_into_a_language_model_to_see/
- r/MCAS: https://www.reddit.com/r/MCAS/comments/11y3c28/i_fed_this_subreddit_into_a_language_model_to_see/
- r/CFS: https://www.reddit.com/r/cfs/comments/11y3ryd/i_fed_this_subreddit_into_a_language_model_to_see/
- r/Dysautonomia: https://www.reddit.com/r/dysautonomia/comments/11y3hzq/i_fed_this_subreddit_into_a_language_model_to_see/
UK CV Fam[edit]
Harriet Carroll and Kevin Deans took the lead on this survey.
https://ukcv.onlinesurveys.ac.uk/cv-longhaul (use archive.org to view the original contents - https://web.archive.org/web/20220301000000*/https://ukcv.onlinesurveys.ac.uk/cv-longhaul)
Jan 15, 2023 analysis: https://dontbelievehype.co.uk/covid-%26-vaccines/f/post-covid-vaccine-survey-results
July 29, 2022 Twitter observations: https://twitter.com/angryhacademic/status/1553025222332268544
CAERS[edit]
CAERS is a passive citizen-led surveillance system (not a survey).
Findings: https://caers.info/adverse-event-report-findings/ Available via archive.org: https://web.archive.org/web/20230608022124/https://caers.info/adverse-event-report-findings/