Newly injured guide

From Long Haul Wiki
Jump to navigation Jump to search

Vaccine injuries aren’t new[edit]

Vaccine safety issues have surfaced in the past:

  • Japan stopped using HPV vaccines due to safety issues.
  • Lymerix, a Lyme vaccine, was pulled off the market despite demonstrating effectiveness.
  • Pandemrix, a H1N1 vaccine, was pulled off the market after safety issues regarding narcolepsy surfaced.
  • Researchers have published papers on autoimmune issues with aluminium-based adjuvants used in vaccines.

These safety issues have existed for a long time. The HPV vaccines continue to generate billions of dollars in sales each year despite Japan discontinuing their use. Unfortunately, there has not been much progress in treating vaccine injury. This is part of the reason why some doctors are dismissive towards the vaccine injured- they don’t know how to treat those patients.

Mainstream Western medicine does recognize certain rare conditions like Guillain Barre Syndrome as vaccine injuries.

  • A diagnosis of such a condition makes it easier to get medical treatment, which is generally experimental.
  • Those particular diagnoses may make it less difficult to get some financial compensation for vaccine injury.

Treatment[edit]

Some good news: it seems like many vaccine injured people will see significant improvement (or recovery) after several months. It is unclear if any treatment speeds up or slows down that process.

Because COVID-19 vaccines are so new, treatment is basically medical experimentation that tries to fix the problems caused by medical experimentation.

COVID-19 vaccine injury has many similarities to these other conditions:

  • Long COVID / PASC (Post-acute Sequelae of COVID-19)
  • ME/CFS
  • Chronic Lyme
  • Lyme+ (this is basically Lyme-like health problems caused by non-Lyme bacteria, viruses, parasites, etc.)
  • Post viral syndrome
  • ASIA (Autoimmune/Inflammatory syndrome induced by adjuvants)
  • Gulf War Syndrome
  • Breast implant illness / Silicone implant incompatibility syndrome
  • Mast Cell Activation Syndrome
  • Dysautonomia, POTS

It is theoretically possible to repurpose existing treatments and cures so that they can be applied to vaccine injury. If you happen to have medical devices, breast implants, or other foreign objects in your body, removing that object may be a possibility. See the page on foreign object infections. The bad news is that most of the illnesses listed above do not have a cure despite patients trying to treat themselves and millions of research dollars spent on ME/CFS, Gulf War syndrome, and Lyme. Only Lyme+ has a cure that might be useful for vaccine injury.

Treatments for Lyme+ involve getting rid of problematic bacteria, viruses, parasites, etc. that are causing chronic health issues. If COVID-19 vaccines turn pre-existing infections into something that’s debilitating, then Lyme+ treatments may work for vaccine injuries. However, at the moment, it is unclear if Lyme+ treatments are useful for the vaccine injured.

For a list of doctors treating vaccine injury and what treatments they are trying here, see this page. Long COVID treatments are included on that page because most of those treatments appear to work in the vaccine injured (with the exception of giving vaccines to the vaccine injured).

Because all/many of the treatments are experimental, you risk harming your body. Please be careful and understand the risks of what you are doing.

If you want to minimize your risk, you can start with the treatments that have long track records of being safe. There are low-risk treatments and drugs that are safe enough to be sold over-the-counter:

  • Baby aspirin (low dose aspirin)
  • Not exerting yourself physically/mentally to avoid post-exertional malaise
  • Low histamine diet
  • Certain anti-histamine drugs
  • Melatonin (*prescription drug in the UK)
  • Ivermectin (*prescription drug in most developed countries)

Your other options involve risk. Here are some prescription drugs and treatments with mild risk:

  • Statins
  • Corticosteroids like prednisone

The following prescription drugs have “black box” warnings or other serious safety issues:

  • Maraviroc
  • Fluvoxamine and most SSRIs - suicide risk, can lead to severe withdrawal problems if used long-term
  • Benzodiazepines - can lead to severe withdrawal problems if used long-term

Many doctors will not give you informed consent about the risks of SSRIs, antidepressants, and benzodiazepines because they aren't aware of them. You should do your own research. (e.g. Many doctors simply don’t know about the safety issues of the drugs that they prescribe. Many people do not know that Brianne Dressen’s and Maddie de Garay’s disabling injuries during the clinical trials were not reported to the public.)

Medical testing[edit]

Before doing anything risky, it is probably a good idea to figure out what you have.

Medical testing might also help you deal with people who don’t believe that your health problems are “real”.

Tests sensitive to vaccine injury[edit]

Auto-antibody tests from German labs (CellTrend, ERDE, Berlin Cures) - The word “auto-antibodies” refers to antibodies that engage in ‘friendly fire’ and attack your body’s own cells instead of things that shouldn’t be in your body. Auto-antibodies are not a sign of good health because your immune system should not be trying to attack its host. Because healthy people have autoantibodies too (at low levels), there can be some subjectivity as to whether your autoantibodies are problematic. That depends on their levels and whether you have symptoms in line with those antibodies.

Most doctors aren’t familiar with these tests and may not know what to do with them.

These tests provide evidence that vaccine injury has a biological basis and not a psychogenic or psychological basis. Other objective tests can also provide evidence- however, testing positive on those tests is less common among the vaccine injured.

Other medical tests (some of which you can do at home)[edit]

Abnormal pulse - You can measure your own pulse to see if it is too fast (e.g. over 100bpm while resting), too slow (below 60bpm is borderline slow for non-athletic adults), or irregular. A doctor can use an ECG to measure your heart’s electrical signals to detect abnormalities.

Medical imaging (e.g. ultrasound, X-ray, MRI) to detect myocarditis or pericarditis - Some vaccine injured people have myocarditis/pericarditis while others do not (even though their heartbeat is not normal). Ask your doctor about these tests. If a doctor wants to give you an MRI “with contrast” involving a gadolinium-based contrast dye, please do your own research on the safety of gadolinium-based contrast dyes. A Reddit thread summarizes the concerns as patients report debilitating long-term health effects: https://www.reddit.com/r/neuroscience/comments/cja9pe/connection_between_gadoliniumbased_contrast/ Also see GadoliniumToxicity.com.

Chiari malformation - A Chiari malformation refers to a part of the brain (cerebellum) that dangles down into the spinal column instead of holding its normal rounded shape. This unusual structure can be detected via a scan of the brain (e.g. MRI, CT, etc.). Because some people have a Chiari malformation without symptoms, diagnosis is based on both symptoms and an abnormal brain scan.

MRI of human brain with type-1 Arnold-Chiari malformation and herniated cerebellum.jpg

Chiari support groups and forums will have additional information on this condition.

Chiari might be a co-morbid condition that is more common among the vaccine injured.

Hypermobility - Some people have extremely flexible joints and are prone to physical injury due to that hyperflexibility. The flexibility did not arise from stretching or contortionist training. The Beighton test can be performed at home and provides objective evidence for medical diagnosis.

Hypermobile Ehlers Danlos Syndrome (hEDS) support groups may have more information on that condition with information on doctors knowledgeable about diagnosing and treating that condition. EDS support groups are another place to look for information on hEDS.

hEDS might be a co-morbid condition that is more common among the vaccine injured.

Dizziness, fast heartbeat, or fainting when going from lying down to standing - If you experience this, you can do a poor man’s tilt table test at home as described in Youtube videos such as this one: https://youtu.be/eX7ZWWVVPXo . A tilt table test at a specialist will be more reliable. It will measure both heart rate and blood pressure.

The NASA Lean Test may be a more sensitive test for spotting issues with orthostatic intolerance (development of symptoms when standing upright that are relieved when reclining). The Health Rising ME/CFS website has an analysis of the NASA Lean test along with simple instructions for performing the test at home or in a doctor's office.

Mast cell activation syndrome (MCAS) and histamine intolerance - These related conditions have similar symptoms and treatments. Diagnosis often involves doing a trial run of a low histamine diet and/or antihistamines. See the page on MCAS and histamine intolerance for information on how to try low histamine diets and how to find specialists.

Various auto-antibody tests - Your body has a very long list of antigens that it can theoretically produce auto-antibodies against. For some/many of those antigens, commercially-available antibody tests exist. While it is possible to throw every medical test that exists at a patient, doing so isn’t necessarily productive. If enough tests are used on a patient, some will come up positive because medical tests have a false positive rate.

However, auto-antibodies seem to be far more common in long haulers than average people. It is likely that a significant portion of symptoms are being driven by autoimmunity and that detectable autoantibodies are being produced in many patients. Auto-antibody testing relevant to particular symptoms (e.g. POTS, small fiber neuropathy, personality changes, thyroid) may be warranted. Autoimmunity often targets specific tissues and therefore generates unique symptoms, e.g. attacks on small nerve fibres will generate symptoms consistent with small fiber neuropathy.

Some doctors may erroneously assume that no autoimmunity is occurring if ANA and other initial auto-antibody tests are negative. However, those tests are far from being reliable in ruling out autoimmunity.

Dysfunctional nerves and/or small fiber neuropathy - Damage to the small fibers of the peripheral nervous system can cause burning pain, numbness, inability to sense hot/cold, and/or tingling sensations. A skin biopsy can measure the density of nerve fibres in the skin and test for small fiber neuropathy. Non-standard auto-antibody tests for SFN are also available, which may be useful for patients seeking experimental IVIG treatment. IVIG approval resources are available here.

The ability to sweat normally can be tested via the QSART test.

Lyme tests - This is a very controversial topic, but the short story is this: the tests are bad and have a very high rate of false negatives. If you test positive, you should go see a doctor about getting treated (*standard antibiotic regimens do not wipe out persister-form bacteria in animal models or 'in vitro' studies, so treatment may not necessarily work). If you test negative, you or your doctor may erroneously assume that you do not have Lyme.

If you have tried everything else and your health problems persist, you can look up the symptoms of Lyme disease. Try https://www.lymedisease.org/lyme-disease-symptom-checklist/ Then, if you think you might have Lyme, you can do your own research on the controversy surrounding chronic Lyme. DrBeen’s conversation with Steven Philips on Youtube is a good introduction to the controversy. Philips believes that chronic illness is linked to transmissible diseases and that chronic illness can be treated. The other side of the controversy argues that chronic Lyme doesn’t exist. They may argue that grifter doctors exploit their patients for several years by “treating” them for Lyme bacteria that don’t exist.

Other medical tests - This list is not exhaustive and leaves out many things. You could have a health condition that doctors know how to diagnose and treat.

A longer list of medical tests can be found in this Google Sheets document.

Doctors who don’t want to try[edit]

There can be different reasons why doctors may not want to help you with serious health problems:

  • Denial of vaccine injury. For social, political and non-medical reasons, some doctors want to support the narrative that vaccines are “safe and effective”.
  • Lack of knowledge. A doctor may know very little about diagnosing and treating vaccine injury.
  • Unwillingness to say “I don’t know”.
  • Inability to help. It would take time for a doctor to learn about vaccine injury and how to treat it, especially when vaccine injuries (and similar conditions like ME/CFS) are poorly understood. Many doctors do not have the time to learn about obscure health conditions. Or, because of how they are paid, they will not be properly paid for the time that they spend treating vaccine injured patients.
  • Persecution from the medical establishment. Currently, doctors can lose their job for prescribing ivermectin, opposing vaccine mandates on social media, or for recognizing vaccine injuries that the medical establishment does not recognize. Many people do not want to lose their job.

You may encounter doctors that lie to you, gaslight you, misdiagnose you with anxiety or a functional disorder (psychological illness), or otherwise dismiss you. Trying to fight these doctors is probably not the most productive use of your time.

Finding a doctor who is willing to help[edit]

  • The second tab in this Google sheet contains lists of doctors who treat long COVID and/or vaccine injury. The first tab in that spreadsheet lists support groups for vaccine injury. Those support groups often have members discussing doctors in your area.
  • Some doctors are willing to help long COVID patients. Because the treatments for long COVID seem to work for vaccine injury, you can simply tell your doctor that you might have long COVID. There is no definitive test for long COVID that is commercially available. (A protein sequencing test may be able to tell the difference between vaccine-generated proteins and wild virus proteins because their protein sequences are different. However, such a test is not commercially available currently.)
  • Alternative and natural medicine practitioners tend to be very open-minded. However, be careful as some of these practitioners claim to have a cure for every health problem that exists.
  • In the United States, a DO (doctor of osteopathic medicine) would have training in alternative medicine so they tend to be very open-minded. They are able to prescribe medications like a MD.

Vaccine injury compensation[edit]

Billions of dollars have been paid out for vaccine injury claims as most countries have vaccine injury compensation programs. However, your country’s system likely does not work the way you think it works.

To understand how things work in your country, do web searches for

  • “Vaccine injury” attorney
  • “Vaccine injury” lawyer
  • “Vaccine injury” lawyer United States (replace US with the name of your country)

Law firms will put useful information on the Internet as a way of attracting new clients.

At the moment, many programs are not paying COVID-19 vaccine claims (but may do so in the future). The amount of money being paid out may be low.

Your particular vaccine injuries may be dismissed and not considered to be vaccine-related. The appendix at the end of this document has a list of conditions that are more likely to be considered a vaccine injury (in the eyes of conventional, mainstream medicine). However, you may wish to talk to a lawyer/attorney who specializes in vaccine injury claims (for your country) because they would likely know more than you do about which injuries will be recognized.

Closing thoughts[edit]

Vaccine injury sucks. It is not well understood so there isn’t a clear treatment or cure. It can also be frustrating to deal with doctors who don’t want to help you. If you want a place to vent, come join the support groups.


Appendix - Health conditions that mainstream medicine may consider to be vaccine-related[edit]

  • Heart: Myocarditis, pericarditis
  • Allergy: Allergic reaction to the vaccine or a vaccine component such as PEG (polyethylene glycol).
  • Shoulder injury: SIRVA, frozen shoulder, adhesive capsulitis
  • Bleeding disorders: Low blood platelets (thrombocytopenia), VITT (Vaccine-Induced Immune Thrombotic Thrombocytopenia, ITP (Immune thrombocytopenic purpura).
  • Blood clotting disorders: e.g. embolism (blood clot), stroke
  • Facial paralysis: Bell’s Palsy.
  • Nerve damage: Guillain barre syndrome (the immune system damages the nerves, causing muscle weakness and sometimes paralysis).

Certain rare conditions:

  • CIDP (this is sort of like the permanent form of Guillain Barre Syndrome)
  • Parsonage Turner syndrome (brachial neuritis)
  • ADEM (Acute disseminated encephalomyelitis)
  • Aplastic anemia (not enough new blood cells)
  • Cellulitis (bacterial skin infection)
  • Complex Regional Pain Syndrome - a form of chronic pain that usually affects an arm or a leg
  • Encephalitis - brain swelling, which can be caused by an autoimmune response
  • Polymyalgia Rheumatica - inflammatory disorder that causes muscle pain and stiffness, especially in the shoulders and hips
  • Polyneuropathy - simultaneous malfunction of many peripheral nerves throughout the body
  • Pemphigus - blisters on skin (Google image search this to see what it looks like)
  • Transverse myelitis - inflammation of both sides of one section of the spinal cord
  • Vasculitis - a group of disorders that destroy blood vessels by inflammation